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DD FOCUS GROUP AT ARIZONA PHYSICIANS IPA, CALLING FOR PARENTS OF DD CHILDREN
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The state affiliated medical insurance plan, APIPA, is seeking input/feedback from parents of children with coverage under Developmental Disabilities!!! This is a great opportunity to be advocates for change in our medical insurance system! APIPA/DD Health Services is seeking input from parents to improve the medical insurance approval system and medical coverage for our children with developmental disabilities!!!
The meeting will be a luncheon, held at APIPA/DD Health Services from Noon to 2pm on a weekday early to mid January. The date is yet to be determined, based on parent response. If you and your family have had challenges getting timely diagnosis, testing, treatment, and/or Prior Auth services, for your child with a developmental disability now is your time to speak out and help be a positive influence for change!!!
This is a rare opportunity to give a health insurance plan feedback and suggestions on:
• The role of DD advocate @ APIPA
• The process Improvement @ APIPA
o Prior Auth- diapers, formula , DME
o Grievance/Appeals
o Overall ease of interactions
o Vendor Relationships (Doctors Services etc.)
• Network Needs (More experienced doctors that have autism spectrum diagnosis
and treatment experience being covered under the AHCCCS plans)
• EPSDT - Early Periodic Screening, Diagnosis and Treatment for ALTCS/title 19
children with disabilities
• Open Discussion /Questions with APIPA decision-makers/staff
Please contact Andrea Ford, Parent-Advocate, to sign up at 623-474-3866, or email Andrea at: asd_ddparentadvocates@yahoo.com
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LIVING WITH A SPINAL CORD INJURY
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Are you at least 18 years-old and have you lived with a spinal cord injury for at least 5 years? If so, we would like to invite you to participate in a study being conducted at the University of California, Irvine. The purpose of the study is to examine physical and affective well-being among people with a spinal cord injury. If you choose to participate, you will be asked to complete a series of over-the-phone interviews. You will be compensated $150.00 for completion of the study. If you are interested in participating or have any questions, please call the emotion research laboratory at 949-824-3991 or email us at emotion@uci.edu.
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RESEARCH PARTICIPANTS NEEDED!
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The Center for Adaptive Neural Systems at The Biodesign Institute at ASU, is looking for people with spinal cord injury who would be interested in participating in research geared towards improving the quality of life of individuals with disabilities.
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Link here to details of projects
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The Biodesign Institute at Arizona State University
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Contact:
Manoshi Bhowmik at 480-727-8396 for SCI Research Projects
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RESEARCH TARGETING THE IMMUNE SYSTEM IN PERSONS WITH SCI
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Dr. Campagnolo of Barrows Neurological Clinic is currently conducting research that examines a person’s ability to fight infections following spinal cord injury. The study is conducted at Barrows Neurological Clinic, Suite 300. You will be reimbursed for your time and travel.
If you wish to participate please leave your name, address, and phone number at 602-406-7711 or 602-406-6211.
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Eligibility:
You are 21 years and older and have had a spinal cord injury 4 months ago or longer
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Barrows Neurological Clinic
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Contact:
Dr. Campagnolo
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RESEARCHER SEEKING PEOPLE WITH DISABILITIES TO PARTICIPATE IN RESEARCH STUDY
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Are you a person who currently lives with spinal cord injury? Do you know someone who currently lives with a spinal cord injury?
Do you have an interest in participating in an exciting and innovative research study?
Do you have an interest in learning more about yourself?
Are you currently struggling with some part of your life? If so, do you want to learn some ways to potentially help you change your life?
If you answered "YES" to all or most of these questions, are interested in participating in a research study, and meet the following criteria then contact this study's researcher.
The University of Wisconsin - Madison, Department of Rehabilitation Psychology, 432 N. Murray Street, Madison, WI 53706 will be sponsoring this research study. Please call 608-438-2478 or email smstuntzner@wisc.edu for more information.
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Eligibility:
1. Have lived with a spinal cord injury for at least one year.
2. Are between the ages of 18 and 55.
3. Might feel that your injury was 'unfair' or 'unjust' regardless of the cause or attributing factor.
4. Would be interested in working on forgiveness
5. Do not currently drink over three drinks per day or use illegal substances.
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Contact:
Susan Stuntzner, Rehabilitation Psychology Doctoral Candidate
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SEEKING WOMEN WITH SCI FOR RESEARCH STUDY
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Are you a woman with a spinal cord injury who has been injured for at least one year?
If so, you have important information that could greatly benefit other women with spinal cord injuries in similar situations.
This is a request for women with SCI (aged 18 or older) who are both employed and unemployed to participate in an on-line research project.
Need: Research on the return to work experiences of women with SCI is close to nonexistent. Increasing the understanding of what it is like to be a woman with a SCI who has either returned to work, attempted to return to work, or would like to return to work will offer very valuable insight into understanding the most effective approaches to helping women return to work.
Purpose: The purpose of this study is to gain an increased understanding of the return to work experiences of women with SCI as well as issues or barriers associated with the ability or inability to return to work. Factors that influence quality of life and job satisfaction will also be investigated.
About the researcher: My name is Elizabeth Lasher and I am a doctoral student in the department of Counselor Education, Counseling Psychology, and Rehabilitation Education at The Pennsylvania State University. I have had a special interest in working with women with spinal cord injuries for a number of years. Before returning to school to pursue a doctoral degree, I worked as a rehabilitation counselor for ten years on a spinal cord injury unit at a rehabilitation hospital in Pittsburgh, PA.
If you are interested in participating in this on-line study, or would like to read more about it, please go to the following link, which will take you to a secure website.
The survey can be accessed one of two ways: by going to www.psychdata.com and entering survey #119800 or by directly using the link: www.psychdata.com/s.asp?SID=119800
If you have any additional questions or will require accommodation(s), please contact me: ejl155@psu.edu.
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SPINAL CORD INJURY VOLUNTEERS ARE NEEDED
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The Translational Pain Research Group at the Brigham and Women's Hospital is conducting clinical trials that evaluate various medications to help relieve chronic neuropathic pain as a result of a Spinal Cord Injury.
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Eligibility:
You may be eligible for this research study if you are 18-70 years old; have been diagnosed with a Spinal Cord Injury; have had chronic neuropathic pain for at least 3 months..
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Click here for more information
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Contact:
Kate Jenkins at 617-525-PAIN (7246) or www.paintrials@partners.org
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SPIRITUALITY AND SPINAL CORD INJURY RESEARCH
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Dr. Irmo Marini, Ph.D, C.R.C., Professor at the Department of Rehabilitation, The University of Texas-Pan American is conducting a research project called Spirituality and Spinal Cord Injury. It is designed to collect responses from people with Spinal Cord Injury from around the United States about their spiritual beliefs in relation to their disability and the importance of spirituality in their lives.
He is currently looking for participants. If you know someone who would like to participate, please ask them to visit the link http://www.surveymonkey.com/SCI . All responses will be confidential and email addresses are moved by the webmaster so that responses cannot be traced back to any individual. This research has been reviewed for the protection of human subjects by the Institutional Review Board-Human Subjects’ in Research.
If you have any question regarding this study, please call Dr. Marini at 956-316-7035 or email imarini@panam.edu.
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